I haven't blogged in awhile. You ask why now?  Well I'm up at this ungodly hour.... 5:00 am.  Troy has been up on  & off crying all night, which has made for a very long night.  The night before wasn't much better. Now shots played a major part in his lack of sleep Thursday night.  He ran a fever most of the day & was just not up to being his perky self.  We did manage to keep his temperature under control & escaped a trip to the emergency room.  I was nervous though that we were making the right decision..  I opted on giving him a double dose of the cortef & giving him liquid tylenol. Within an hour his temperature dropped from 101 to 99.  Then we kept checking it every hour. 

Troy seen Dr. Curry on 9/4th for his well child visit.  He also received his 2nd set of shots.  He now weighs in at 15 lbs 4 oz & is 26" long.  He now is in the 18th percentile for weight & the 40th percentile for height.  Definitely an improvement from his last visit on 6/17th in which he weighed 11 lbs13 oz & was in the 12th percentile for both.  We didn't hear any more talk about him taking growth hormone much to our relief. So,overall he seems to be doing very well.

He continues to reach his milestones.  He rolls everywhere & it is hard to keep him contained to one little area.  He has discovered his  hands & feet & can be seen quite frequently playing with them. Changing him has become a struggle as he tries to roll away from you & dressing him is like dressing an octopus.  In every way Troy is developing like a typical 5 month old baby except he is legally blind. So far I don't see any improvement in his vision but am optimistic that his sight will improve as is the case with many children with SOD.

Troy seen Dr. Lebel a genetics doctor on 18th.  I will try to post the results of that doctors visit shortly.



Patty
Mimi to one special little boy Troy